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Sufferers of Friedreich’s Ataxia face major setback as HSE Drugs Group rejects Skyclarys reimbursement

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Sufferers of Friedreich’s Ataxia face major setback as HSE Drugs Group rejects Skyclarys reimbursement
Sufferers of Friedreich’s Ataxia face major setback as HSE Drugs Group rejects Skyclarys reimbursement
There is still hope as the recommendation will have to go before a meeting of HSE senior management on August 25 for a final decision
RTÉ News
RTÉ News🏁 first to report10 hrs ago
HSE recommends not covering Friedreich's Ataxia drug cost
The HSE Drugs Group has decided to recommend that the drug Skyclarys, for Friedreich's Ataxia, should not be covered by the HSE.