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Penn receives $10 million to study new treatment for ‘relentless,’ rare genetic disease with no cure

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Penn receives $10 million to study new treatment for ‘relentless,’ rare genetic disease with no cure
Penn receives $10 million to study new treatment for ‘relentless,’ rare genetic disease with no cure
The Illinois-based nonprofit Clayco Foundation donated the funding for research on retinal vasculopathy with cerebral leukoencephalopathy, or RVCL.
CBC News
CBC News🏁 first to report2 hrs ago
She has an ultra-rare disease. Now this N.S. girl will be one of the first to test a possible cure
Harper Tanton will be the fourth child in the world to participate in the clinical trial for kids who have CTNNB1 syndrome. She largely depends on a wheelchair and has developmental and speech delays.
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