📰 4 sources covering this story

‘It’s my 30th birthday, this is the gift I dreamed of’ – woman with Friedreich’s ataxia as HSE covers cost of life-changing drug

First covered 2 days ago · latest take 39 mins ago. Compare how each outlet is covering it — and rate the sources you trust.

‘It’s my 30th birthday, this is the gift I dreamed of’ – woman with Friedreich’s ataxia as HSE covers cost of life-changing drug
TheJournal.ie
TheJournal.ie17 hrs ago
HSE to fund Friedreich's ataxia drug after improved price but notes 'limited efficacy'
The HSE said it ‘took account of a substantially improved financial offer made in recent days by the company Biogen’.
Irish Times
Irish Times18 hrs ago
HSE agrees to fund drug for patients with Friedreich’s ataxia
Omaveloxolone, branded as Skyclarys, has been approved in US and Europe for treatment of disease
RTÉ News
RTÉ News🏁 first to report2 days ago
Friedreich's Ataxia campaigners calling for drug approval
A demonstration has taken place in Dublin city centre calling on the HSE to approve reimbursement for Skyclarys, a drug used to treat Friedreich's Ataxia.
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