Washington Examiner
US · 28 mins ago
✦ 72→ Right
Reform FDA advisory committees and put rare disease patients first
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Quality 72/100
Partisan intensity 68/100
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→ Right ✓ Fair headline
An opinion piece by a biochemist and public health expert argues that the FDA is inadequately serving patients with rare diseases and calls for reform of FDA advisory committees to better represent patient voices.
Reform FDA advisory committees and put rare disease patients first
The Food and Drug Administration (FDA) is failing patients with life-threatening rare diseases. As a biochemist and public health expert, I have witnessed officials turning a blind eye to the needs, concerns, and voices of families caring for the nearly 30 million Americans — half of them children — with debilitating and terminal rare conditions. […]
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